Rider site regarding VT and ARVD/C

Just got this post from Craig who was responding to another rider story(https://heartattackrider.wordpress.com/2009/03/18/anyone-with-arrhythmogenic-right-ventricular-dysplasi-rvd-who-rides-a-bike/#comments). Here is what Craig says on his site “My name is Craig Cook. In March of 2008 I was diagnosed with idiopathic ventricular tachycardia, a potentially fatal heart arrhythmia. I was fit and healthy, having spent a good part of my adult life as an elite cyclist, much of it racing in Europe. This blog is about my condition, the things that might have led to it, and the course of treatment I am on. It is written as a resource for other endurance athletes who might have arrhythmias.”

Thanks for the post Craig and posting about your health experiences.

Hi Eric,

Strange we haven’t crossed each other’s path in the blogosphere. My (very un-updated blog) discusses my adventures with VT and a non-genetic form of ARVD/C… you and your readers may be interested. I will update soon, currently in my final weeks in grad school, then freedom, and time. I still train – 8-10hrs a week, no competition until some issues get figured 0ut (occassional VT = zaps by the ICD)… http://v-tach.blogspot.com/ Nice effort on your blog, keep up the good work.

Best, Craig

http://v-tach.blogspot.com

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Anyone with arrhythmogenic right ventricular dysplasi, RVD, who rides a bike?

This is a message from Chris D who askes:

Hi; I have been looking on the web to talk to people with heart issues who cycle still or in the past. I heard Paul Sherwin describe Haydens durin the TOC and have been on the web looking since. I get the Riki thing he shared however he is younger and likely with much less scar tissue etc… I do not doubt Riki and will likely try it. question, does anyone else know what other treatments he went through; meds etc…. I told the Doc his story and She said that he is is taking great risk regardless of Riki and any meds etc…. I have been a cyclist since I can remember . Over the past 6-8 years I have experienced fatigue issues and lightheadedness and poor results but I fought through and thinking I could get back to the Level; but I never have come back and now just ride with a slower group and not with the bigboys here. I had no idea that I had this condition like Hayden Roulsten arrhythmogenic right ventricular dysplasi. That is until I stood up one morning after breakfast and hit the floor like Ali did Fraizer. a VTAC type arrhythmia slowed blood flow to the brain and I went out. The good news is my family say what happened and forced me to go to the hospital. Whereas before I would have chalked it up to over training and poor recovery nutrition etc… After many days in and out of the hospital and Dr’s office’s; Cardiac Ablation and Meds (BetaPace)(Toprol). Another Ablation procedure is in the table and if that fails and my ejection fraction remains low then it is a Defibrillator…great. My question is this: Do people ride moderately on Betapace? Can one at least spin for leisure and fitness still? I have the same question to anyone with cycling experience and defibulators? And improve fitness level? My Doc saiy no riding….I mean this hurts me like nothing else Cycling is ingrained into my life and family I fear losing the ability to stay involved… The question is real here and I do not ask anyone to play Doctor. I have heard it all from them and understand the risks from their perspective. However I feel like my definition of exertion is different than theirs and I know they are not the least bit athletic aerobically…. I am not in denial; just looking to learn and live on the bike again regards