Anyone with arrhythmogenic right ventricular dysplasi, RVD, who rides a bike?

This is a message from Chris D who askes:

Hi; I have been looking on the web to talk to people with heart issues who cycle still or in the past. I heard Paul Sherwin describe Haydens durin the TOC and have been on the web looking since. I get the Riki thing he shared however he is younger and likely with much less scar tissue etc… I do not doubt Riki and will likely try it. question, does anyone else know what other treatments he went through; meds etc…. I told the Doc his story and She said that he is is taking great risk regardless of Riki and any meds etc…. I have been a cyclist since I can remember . Over the past 6-8 years I have experienced fatigue issues and lightheadedness and poor results but I fought through and thinking I could get back to the Level; but I never have come back and now just ride with a slower group and not with the bigboys here. I had no idea that I had this condition like Hayden Roulsten arrhythmogenic right ventricular dysplasi. That is until I stood up one morning after breakfast and hit the floor like Ali did Fraizer. a VTAC type arrhythmia slowed blood flow to the brain and I went out. The good news is my family say what happened and forced me to go to the hospital. Whereas before I would have chalked it up to over training and poor recovery nutrition etc… After many days in and out of the hospital and Dr’s office’s; Cardiac Ablation and Meds (BetaPace)(Toprol). Another Ablation procedure is in the table and if that fails and my ejection fraction remains low then it is a Defibrillator…great. My question is this: Do people ride moderately on Betapace? Can one at least spin for leisure and fitness still? I have the same question to anyone with cycling experience and defibulators? And improve fitness level? My Doc saiy no riding….I mean this hurts me like nothing else Cycling is ingrained into my life and family I fear losing the ability to stay involved… The question is real here and I do not ask anyone to play Doctor. I have heard it all from them and understand the risks from their perspective. However I feel like my definition of exertion is different than theirs and I know they are not the least bit athletic aerobically…. I am not in denial; just looking to learn and live on the bike again regards

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